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Researchers from Augusta University examining adult experiences living with ASD (including Aspergers).

We hope to explore any connections between behaviors, diagnoses, interactions, and experiences in the lives of individuals diagnosed within the spectrum. Interviews will be conducted online through a program called Qualtrics, and will consist of 45 questions. If you are an adult who has been diagnosed, please take the time answer our questions by clicking on the following link. This research has received IRB approval. Please consider passing the link to others.

Thank you--Melissa Powell-Williams and Kathryn DelGenio--

http://augustastate.co1.qualtrics.com/SE/?SID=SV_cFOKo6jKoobbFGZ

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Survey for Parents of Children with Autism

The goal of this study is to identify any deficits in care the families of children with Autism experience and explore where, in these deficits; a genetic counselor can work to improve the experiences of the families. Parents of children with autism are invited to participate by filling out a survey.

By clicking on the following link, you are agreeing to participate in the survey: 

https://bbmc.ouhsc.edu/redcap/surveys/?s=8EJCHM8YCH

 

If you click the link above, it will take you to a secure survey website.  On the first page, there will be a statement about consent.  After reading the statement, if you click ‘Yes, I understand’, you will be taken to the beginning of the survey.  

If you have any questions regarding the survey or participation, please feel free to contact study organizer at This email address is being protected from spambots. You need JavaScript enabled to view it. .   

For questions about your rights as a research subject, contact the OUHSC Director of the Human Research Participant Protection Program at (405) 271-2045.  

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SPARK Research Study

What is SPARK?
•SPARK is a free online study with a simple mission:
to speed up research and advance the understanding
of autism
•SPARK aims to be the largest study of its kind with the goal of building a community of 50,000 individuals with autism and their families across the nation
•The entire autism community is encouraged to participate, including adults and children diagnosed with autism, as well as their biological parents
and siblings
•By dramatically increasing the number of research participants, SPARK aims to help facilitate research that has not yet been possible

An important part of SPARK is the collection of DNA so it can be analyzed to expand our understanding of the role of specific genes in the development of autism. SPARK will ask you to share basic information about your medical and family history, and if you choose, a DNA sample using a saliva collection kit.

To learn more about SPARK and register online via a secure portal, visit www.SPARKforAutism.org/UMinnesota. All data provided to SPARK will be stored without any identifying information and kept confidential.

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LEND Studies Transition from Pediatric to General Dentistry

Does your child need medical immobilization or general anesthesia for dental treatment? Have they transitioned from a pediatric to an adult dental clinic within the past 5 years?

Consider being part of a small group discussion that aims to identify barriers that hinder or promote easy transition for a child with a developmental disability from a pediatric dental office to a general dental office. The information gained will be used to educate the dental profession as well as policy makers regarding potential barriers for those with developmental disabilities and dental care access. Participants will receive $15 gift card.

WHEN:(Sundays) 4.17.16//12-2pm OR 4.24.16 //3-5pm
WHERE: Roseville Public Library // 2180 Hamline Ave N, Roseville, MN

For more information contact Michele Olson (612) 424-1591
This email address is being protected from spambots. You need JavaScript enabled to view it.

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Toe Walking Study

The Physical Therapy Department at Children's Hospitals and Clinics of Minnesota is conducting a study to determine the efficacy of serial casting versus a new AFO prototype in children who toe walk.

Comparisons in the study will include:
Ankle range of motion
% of time using heel-toe walking pattern
Balance
Strength
Quality of life

Participants placed in the serial casting group will undergo a normal serial casting progression, which typically takes 6 – 8 weeks. If placed in the AFO group, participants will wear the braces 23 out of 24 hours per day with an anticipated timeframe of 14 weeks. Both groups will participate in 1-hour physical therapy sessions 1x/week and complete a home exercise program 5 days/week. Follow up care includes fabrication of non-carbon fiber braces and continued outpatient physical therapy at a rehab clinic.

Inclusion:
4 – 9 years of age
DF ROM = -5 degrees or better

Exclusion:
Unilateral toe walking
Sudden onset toe walking
Diagnoses of: CP, SMA, MD, tethered cord, club foot
Oncology Diagnoses

Contact Nicole Brown for more information:

This email address is being protected from spambots. You need JavaScript enabled to view it.

(952) 930-8685