Parents of children with Autism Spectrum Disorders often struggle with the question of how and when to share information with their child about their diagnosis. Cohen Children’s Medical Center of New York is conducting a major national study focused on parents’ perspectives and experiences related to sharing information about the diagnosis with their child with ASD. If you are a parent of a child from 8 to 25 years of age who has been diagnosed with an Autism Spectrum Disorder (including Asperger’s Disorder or PDD), we would like your input.
If you're interested in participating, please click here to take the survey.
My name is Jared Clapper and I am new to the Minneapolis area currently working at the U in the department of Neurology. I am currently working on a potential start up idea that I have in mind. In general, my idea is to establish a non-profit business and employ special needs individuals in order to create unique, personalized and creative products that can be used as decorative pieces for the home or office or as special gifts.
- If you could, please explain where you buy most of your decorative products for your home or office. Small “Ma and pa” stores? Bigger stores like Home-Depot or Walmart? Online? Other?
- In a short description, what do you like about the product in these stores and why do you pick the products you choose?
- Do you ever buy specialty products for your home or office (such as unique item or creative craft gifts that you would not be able to easily find at most stores)?
- If so, what does purchasing these kind of products fulfill for you (home decoration, fashion addition, office aesthetics, etc…)
- Does this product fulfill any social or emotion role on-top of the functional role it provides?
- Or any of these unique/creative items ever specifically for your kids or significant other?
- In terms of these unique and creative products, what features would you like the products to have that they are (on average) currently lacking?
- Is there any specific product that you would love to see the store sell that it is currently not selling? Any unique or creative ideas that you would like to suggest the store makes and sells?
- What are your thoughts on crafts made from old objects found around the house (Repurposed items commonly referred to as upcycled crafts)?
- Would you buy products like this from time to time if the price was right? Or would you prefer to buy more mainstream decorative items?
- Please mention any other comments as it relates to your purchasing of decorative gifts that you buy for your home or office especially as it relates to uniquely crafted objects. In other words, based on the questions listed above, what is this survey missing?
Did you know that, as a whole, individuals with developmental disabilities (DD) have poorer oral hygiene and are at a higher risk for a variety of oral diseases compared to the general U.S. population?
We are currently conducting research on oral health care in individuals with developmental disabilities. We are looking for caregivers of individuals with developmental disabilities to share their experiences in oral health care both at home and/or in the dental office. The information collected from this survey will provide insight into the specific needs of individuals with developmental disabilities, the barriers they face in obtaining oral healthcare, and solutions they have found to improve their oral health. Once completed, we plan to share our findings with caregivers and oral health professionals to improve the delivery of oral health care in individuals with developmental disabilities.
The survey we are asking you to complete will take approximately 10-20 minutes and can be accessed at https://www.surveymonkey.com/r/oralhealthsurvey2017
Thank you in advance for your time and participation!
The Jacob Lab at the University of Minnesota has started recruiting individuals to join the aV1ation study. AV1ation will test an investigational medicine that blocks a hormone receptor in the brain that is linked to socialization, stress, anxiety, and aggression. We are asking if the study drug can improve social behavior and communication in children and adolescents.
Who Can Participate:
- Ages 5-17 years old
- With an ASD diagnosis
- Are 'high functioning' (for this study, that means an IQ of at least 70)