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“A Correlational Study of Parenting children with ASD in the Black community.”

Does your child, ages 1-12, have Autism Spectrum Disorder and no other mental health diagnosis?

Are you the biological or blood related legal guardian and caregiver of this child?

Do you live in the United States?

Are you between ages 18- 80 years old with proficient reading skills?

Are you African-American?

Do you have internet and computer access?

Are you comfortable participating in a study that references “God”?

If “yes” to all of the above…

You are invited to participate in a research study entitled: “A Correlational Study of Parenting children with ASD in the Black community.”

The online surveys and assessment will take 30-45 minutes to complete and you will need internet access, proficient reading ability and basic computer skills.

The research collected will be used for research ONLY and confidential.

Every participant will receive one Redbox promo code to access 1 free day of rental of a BluRay, DVD, or videogame.

If you believe you are eligible to participate in this dissertation research study conducted by Sandreea Durham  (Capella University Doctoral Candidate) please review informed consent and complete the  screening assessment after selecting “I consent” at bottom of page:

https://sway.office.com/Q1qSEqgZ9FaUGKwZ?ref=Link

 

 Contact Researcher @  This email address is being protected from spambots. You need JavaScript enabled to view it. or (320)322-1873

 

Thank you, 

Sandreea Durham

Study: Talking About a Diagnosis With a Child With ASD

Dear Parent,

We are asking for your help.

Parents of children with Autism Spectrum Disorders often struggle with the question of how and when to share information with their child about their diagnosis. As a Developmental Pediatrician caring for many patients with ASD, I have discovered there is very little research about parents’ disclosure of the diagnosis to their child.  Families as well as professionals would benefit from a systematic study looking at this issue. 

Cohen Children’s Medical Center of New York is conducting a major national study focused on parents’ perspectives and experiences related to sharing information about the diagnosis with their child with ASD.   If you are a parent of a child from 8 to 25 years of age who has been diagnosed with an Autism Spectrum Disorder (including Asperger’s Disorder or PDD), we would like your input.  We want to hear from those of you who have spoken to their child about their diagnosis as well as those who have not yet had this discussion.    

Please click on the link below to help other families by participating in this important research study: 

 

 

This link is to an anonymous on-line questionnaire inquiring about your experience.  The questionnaire will take about 15 minutes to complete. 

If enough families complete our questionnaire, we hope to:

  • Have the most representative study done to date based on a large national sample of respondents
  • Give voice collectively to the experiences of hundreds of families
  • Provide information to professionals so they can better support families in this process going forward

A few important re-assurances:

  • Anonymity: All responses are anonymous
  • IRB Status: Our study has been reviewed by the Institutional Review Board at Northwell Health and approved as an EXEMPT study.  (Letter of exemption available upon request.)
  • Conflicts of Interest: None
  • Outside Sponsors or Funding: None

We know this is a busy time of year for people and we appreciate your time and consideration.  A copy of our results will be offered to all families who complete the questionnaire.

Please click on the link below to help other families by participating in this important research study: 

 

 

Thank you in advance for your kind cooperation.

Alyson Gutman MD

Developmental & Behavioral Pediatrics
Steven & Alexandra Cohen Children's Medical Center of New York
New Hyde Park, NY

https://childrenshospital.northwell.edu

Office: 516 802-6100

This email address is being protected from spambots. You need JavaScript enabled to view it.

Assistant Professor of Pediatrics

Zucker School of Medicine at Hofstra/Northwell

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