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Quality of Life for People With Developmental Disabilities

Do you, or does anyone in your household or immediate family have a developmental disability?  If so, we invite you to participate in a Quality of Life survey conducted on behalf of the Minnesota Governor’s Council on Developmental Disabilities (GCDD).  Your opinions are very important and results of this survey could inform government policy decisions that affect the lives of people with developmental disabilities in Minnesota. 

Answers to the questions throughout this survey should be provided by the person with developmental disabilities to the extent they are able.  Guardians/Advocates should assist as needed or complete this survey on their behalf.

Please keep in mind there are no right or wrong answers, it is your opinions that count.  All of the information you share by participating in this survey will be kept confidential, and your participation will not directly impact any government or private services or support you may be receiving.

Thank you in advance for including your voice in this important quality of life study for people with developmental disabilities in Minnesota!

Please click here to begin taking the survey.

Employment and Autism

Help our team at The George Washington University in learning more about the experiences of individuals withAutism Spectrum Disorder in the workforce by taking our online survey

We hope these results will help further the understanding of how to provide better employment resources and opportunities to individuals with ASD.

•Are you 14 years old or older?

•Do you have Autism Spectrum Disorder?

•Are you interested in sharing your experiences with employment, job training, and mentorship?

Then this survey is for you! 

Please follow this link to take our anonymous survey: 

https://columbiangwu.co1.qualtrics.com/jfe/form/SV_2udHz8bst7O5aKN 

For more information, please email: This email address is being protected from spambots. You need JavaScript enabled to view it..

Caregiver Questionnaire Study on Developmental Disabilities

Caregiver Questionnaire Study on Developmental Disabilities

WHAT ARE THE GOALS OF THIS RESEARCH STUDY?                                                                                                                                                                        

The purpose of this research study is to improve our understanding of the nature of adjustments and accommodations exhibited among caregivers of children with a developmental disability.

WHO CAN BE A PART OF THIS RESEARCH STUDY?

Caregivers of children with developmental disabilities and typical development (of any age) can participate in this study!

WHAT WILL PARTICIPANTS BE ASKED TO DO?

If you decide to participate, we will ask you to complete parent questionnaires about yourself and your child

I WANT TO HELP! WHO CAN I CONTACT?

If you are interested in participating in the study or want to learn more about it, please contact:
Manisha Udhnani
267-425-1160
This email address is being protected from spambots. You need JavaScript enabled to view it.

Parent and Caregiver Perspective on Independent Living Survey

 If you are part of a parent support center or another disability related organization we would also like to request your support in sharing this email with parents or caregivers of children with disabilities that you may work with. 

The purpose of this study is to determine the perspectives of parents and caregivers of individuals with intellectual or other developmental disabilities including autism, between the ages of 5 to 22 on: (1) independent living for their child; (2) independent living skills instruction; (3) independent living skills instruction their child has received in the school setting; (4) who is or should be the primary person responsible for independent living skills instruction; and (5) what independent living skills should be considered as part of the curriculum. The goal is to better support professionals in designing, planning, and implementing instruction to meet expectations for parents regarding their child's future. 

The survey will take approximately 15-20 minutes to complete. All responses are confidential. Only the principal investigators will have access to the completed surveys. If you are willing to participate, click the link at the end of this email to access the survey. If you are willing to distribute this survey please use the survey link provided. There is no compensation for participation in this survey; but we appreciate your time and willingness to help us learn from you. 

This study has been approved by the Vanderbilt University IRB. 

If you have any questions about this research study, please contact Katie Clouse at: This email address is being protected from spambots. You need JavaScript enabled to view it. 

Link to survey: https://redcap.vanderbilt.edu/surveys/?s=KNXN7JTY4M