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Parent and Caregiver Perspective on Independent Living Survey

 If you are part of a parent support center or another disability related organization we would also like to request your support in sharing this email with parents or caregivers of children with disabilities that you may work with. 

The purpose of this study is to determine the perspectives of parents and caregivers of individuals with intellectual or other developmental disabilities including autism, between the ages of 5 to 22 on: (1) independent living for their child; (2) independent living skills instruction; (3) independent living skills instruction their child has received in the school setting; (4) who is or should be the primary person responsible for independent living skills instruction; and (5) what independent living skills should be considered as part of the curriculum. The goal is to better support professionals in designing, planning, and implementing instruction to meet expectations for parents regarding their child's future. 

The survey will take approximately 15-20 minutes to complete. All responses are confidential. Only the principal investigators will have access to the completed surveys. If you are willing to participate, click the link at the end of this email to access the survey. If you are willing to distribute this survey please use the survey link provided. There is no compensation for participation in this survey; but we appreciate your time and willingness to help us learn from you. 

This study has been approved by the Vanderbilt University IRB. 

If you have any questions about this research study, please contact Katie Clouse at: This email address is being protected from spambots. You need JavaScript enabled to view it. 

Link to survey: https://redcap.vanderbilt.edu/surveys/?s=KNXN7JTY4M